NF1 and neurofibromatosis type 1: There are some efforts to build networks for NF1, aiming to cover the general population of NF1 patients, e.g., the CTF clinical care network in the USA (https://www.ctf.org/nf-clinic-network/, accessed on 10 September 2024) and ERN-GENTURIS [33] in Europe, but not all NF1 patients have access to network centers.