Arguably, self-concept is particularly worthy of further research during the current era of rapidly evolving CFTR modulator care, with many of those living with CF having to re-calibrate many aspects of self, surrounding identity, life goals and life expectancy (Middleton et al., 2023; Heijerman et al., 2019; Balfour-Lynn & King, 2022). The gene discussed is CFTR; the disease is cystic fibrosis.