As for behavioral strategies, grandparents implement self-care practices and strive to “live one day at a time,” as exemplified in the following quote: Look, first of all don’t get too caught up about tomorrow, enjoy today, enjoy the small joys and value them, because the really big ones may never come and we’ll lose the small ones... (G., maternal grandmother of a 7-year-old child with centronuclear myopathy due to myotubularin 1 deficiency). The gene discussed is MTM1; the disease is centronuclear myopathy.