The median latency (months) and interquartile range (IQR) from disease onset to diagnosis for the ABC cohort were 38.5 (5.6–92.8) for ALS‐S, 12.3 (2.3–27) for ALS‐F, and 13.4 (12.6–26.2) for C9+ve ALS patients, while for the PGB cohort, 10.9 (1.05–30.8) for ALS‐S, 6.1 (0.3–25.3) for ALS‐F, and 9.8 (1.1–24.9) for the C9+ve ALS subset of patients (Table 1). This evidence concerns the gene C9 and amyotrophic lateral sclerosis.