Pain in NF2 has not been as widely reported as in NF1, but there are potential causes including NF2-related neuropathy, which has been described in up to 60% of NF2 individuals.32 Additionally, during development of the NFTI-QoL, patient focus groups identified pain as a relevant domain for NF2-related QoL.25 Further studies in a larger population of individuals with NF2 are needed to better understand pain prevalence and its causes in individuals with NF2. Here, NF2 is linked to NF2-related schwannomatosis.