These registries collected patient data from ten different countries (United Kingdom, Italy, Spain, Denmark, France, Netherlands, Sweden, Austria, United States, and Germany) and gather information related to four rare diseases: Myotonic Dystrophies (DM), Facioscapulohumeral Muscular Dystrophy (FSHD), Fukutin Related Protein (FKRP) related conditions (e.g., LGMD2I), and Huntington's Disease (HD). The gene discussed is FKRP; the disease is facioscapulohumeral muscular dystrophy.